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sonyaenkelmann

DBS 8: one week on. Confronting mortality and coming out the other side...

Updated: Jun 24, 2022

Well, it is no small exaggeration to say how pleased I am to be writing to you all this week :). In fact to be doing anything. Firstly I need to thank my amazing Neurologist Dr Wes T and neurosurgeon Dr Kristian Bulluss, both of whom stand tall in their respective fields. Thanks also goes to Dr Phillipa my anaesthetist and the incredible and caring team at St Vincents Private in Fitzroy. Nothing builds confidence like having a team of well trained and organised people do their thing...


So, one week on. It is hard to believe one week ago, I wasn't even in Melbourne yet! I have two clips for you this week:

  1. one on the process and getting through

  2. one on my scars, and the DBS unit itself.


How's it gone? In short, our expectations have been blown out of the water. I was most hopeful in getting respite from the dratted on-off sensation of internal tremour, brain fog etc, but I'm not experiencing any of that. We are thrilled. It has also been wonderful for my kids to see I'm well and functioning and that we are on the mend. The process itself was daunting but manageable. I went through a similar experience years ago in child birth where it felt as though I retreated into the core of my being - a very difficult experience to convey. I wasn't stressed but I was definitely preparing myself. I had my rituals: I wrote to my children, I wrote to Andrew. I called him and let him know where the letters were 'just in case'. I spoke with Andrew about my wishes should the unthinkable happen. All these things though small were important for me to make my peace with the world. And I did. I reached a point where I was able to sit and wonder if this is what it was like for someone when they knew they were unlikely to make it out the other side. It gave me peace.


So I hope this is clip is useful or provides some useful insights for you. Enjoy.


And - before I go. I send my love and gratitude to Brad and Caz and our amazing Tassie family who have showered our children with love.





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